The NIH and CDC has announced awards to 10 grantees for the Sudden Death in the Young Registry. Six are current or former grantees from the Sudden Unexpected Infant Death (SUID) Registry: Georgia, Michigan, Minnesota, New Hampshire, New Jersey, and Wisconsin. Four are new grantees: Delaware, Tennessee, the city of San Francisco and the Tidewater region of Virginia.
Grants were awarded on September 30, 2014. After a period of training and preparation, the grantees will begin reviewing cases in January 2015. After obtaining consent, information gathered through Child Death Review and advanced clinical review will be entered into a database managed by the Michigan Public Health Institute and DNA samples will be stored at a biorepository.
A registry of deaths in young people from conditions such as heart disease and epilepsy will help investigators define the scope of the problem and understand the characteristics of youths who die suddenly. The program will estimate the incidence of sudden death in infants, children, and young adults up to age 24 (depending on state mandate) by analyzing comprehensive data on each case.
The NIH's National Heart, Lung, and Blood Institute (NHLBI) will analyze data related to sudden cardiac death while the National Institute for Neurological Disorders and Stroke (NINDS) and CDC’s Epilepsy experts will analyze data on SUDEP (Sudden Unexpected Death in Epilepsy).
The Sudden Death in the Young Registry is jointly funded by the NHLBI, the NINDS, and the CDC.
About The National Heart, Lung, and Blood Institute (NHLBI) is a component of the National Institutes of Health. NHLBI plans, conducts, and supports research related to the causes, prevention, diagnosis, and treatment of heart, blood vessel, lung, and blood diseases; and sleep disorders. The Institute also administers national health education campaigns on women and heart disease, healthy weight for children, and other topics. NHLBI press releases and other materials are available online at: www.nhlbi.nih.gov.
About the National Institutes of Health (NIH): NIH, the nation's medical research agency, includes 27 Institutes and Centers and is a component of the U.S. Department of Health and Human Services. NIH is the primary federal agency conducting and supporting basic, clinical, and translational medical research, and is investigating the causes, treatments, and cures for both common and rare diseases. For more information about NIH and its programs, visit www.nih.gov.